They said that the CGMS was all over the place, not easy to read. They want to try it again next month.
As for Joslin, the social worker told me that she spoke to people there(and ppl around) and that it is really no different from the team that Eri has here. OK, yes, I understand that they are all endo’s and what not, but different opinions, etc…
Eri was in the hospital again. She just got out last night. The endo said to look at the positive…it’s been just about a month since she was last in(which, ok, I can understand being positive, I LIKE positive).(ok, last in for DKA, she was in last week for something else completely…nothing diabetes related).
She is still on the NPH and novolog regimen, with some more tweaking, so we’ll see. It all happened so fast. She woke up Sunday morning with an upset stomach(she had one for a few days, thought it was a new med she was on)…her bgl was 65, but we smelled ketones. She tested…no ketones(annoying)…so, she went to lie down and an hour or so later it was 175…still no ketones showing up, but she got 2 u of novolog and took a shower bc water calms her.
We checked her bgl an hour later and she was up to 268…more insulin and then her NPH(36u). She wasn’t able to eat anything as she was really nauseous, so I got ready and told her she had to go in bc the vomiting wouldn’t stop.
By that time, her bgl went to 438…she made it to the other bathroom and couldn’t move…I had to call 911. She was throwing up blood at this point.
They couldn’t get an IV in(the paramedics) so when we got to the hospital they finally got one in.
Her labs came back, her bgl was up to the 500’s and her co2 was at 3.
They transferred her to ACH to their ICU, again.
They are treating her stomach for gastritis and whatnot and we’re watching her bgl’s(obviously) to see if we have to up her NPH again.
Yes, I am frustrated and I am still looking for more info and answers. Believe me, I’m doing all that I can and so is she. It’s part of what pushed her over the edge last week.