Author: GeishaGirl

  • New meds and BS issues — curious

    So I’m now on pancreatic enzymes, because my lazy sack-of-crud pancreas won’t even help me digest food anymore. (Seriously — can I kick it out of the basement and make it get a job, or at least pay me some rent??) I’m finally digesting fat again, which means…. NORMAL POOP!!! Sorry for the TMI, but after 3 years of diarrhea, I’ve had enough. Also, I suddenly feel satisfied again. I used to eat and eat and eat until I was sick and still feel this overwhelming horrible NEED to eat more, more more! I get now that my body was deficient in lots of stuff because of malabsorption.

    Anyway, I’ve been really good (until today, shame on me!) remembering to take my meds with every single meal. I started taking them last Friday, and my sugars are acting strangely. It seems like I’m suddenly less resistant to insulin — my highs fall faster, and sometimes lead to lows. I’ve had a low every single day since going on these meds, where I haven’t had a single one in over a month before this. I’ve actually had a day this week with TWO lows under 50. I’m sure that this is now becoming a bad cycle, because my liver is probably depleted of glucose for now.

    It seems connected, but how could the meds be causing this? All they do is help me digest fat and protien (ironically, my carb-digesting enzyme, amalyse, works PERFECTLY WELL!!) — why would be able to metabolize more food help my sugars — and maybe help them a little too much?

  • Got some labs back! and an answer to a puzzle? (long)

    A1C down to 6.7!! I know, I know, not ideal, but MUCH better than the low 7’s I’ve been living with since I was diagnosed. My goal for this a1c was under 7. I got that. My next goal is 6.5 or less. If I actually start watching my diet, I can do it!!!

    OTOH, my triglycerides and cholesterol are "borderline" high, but that’s still an improvement over last time, which was flat out high!

    My BP, however, is through the roof — 150/90. I KNOW it’s the weight gain, because my BP goes up 10 points for every 15 pounds I gain!

    And, the grand finale, we think we know WHY I’ve been gaining weight! The problem is that I’ll be at the same weight, exactly, for MONTHS. Then I’ll gain 5-10 pounds in under a week, and that weight will stay on me for another couple of months until I gain again. Exercise doesn’t help, and any kind of diet makes it worse, because I’ve been unable to stick to it, and flip out and eat crappy instead. I’ll be good all day, and then flip out and eat a whole day’s calories before bed. It’s literally been feeling like I’m slowly starving to death, even though I’m over 200lbs and obviously eating just fine. Also, given my excessive stomach problems, especially, shall we say, the rather fast and icky method my body has of eliminating my food, I should be a twig!

    Well… My digestive enzymes are low. It took 3 visits to a gastrointernologist, an endoscopy, 4 vials of blood, and a friggin STOOL SAMPLE to figure this out. Surprisingly (note the sarcasm) the enzymes that are low are the same enzymes produced in the pancreas. Apparently, my pancreas will not be happy until it’s entirely freeloading and not contributing anything.

    So the upshot is that I’m not digesting fat very well. I’m always deficient in dietary fat — and since I was trying low-carb and 2/3 of my calories were from fat, it’s not surprising I was always hungry! Being deficient in fat makes me tired… makes my skin and hair dry… makes me vitamin deficient…and makes my body always unsatisfied with food and makes me feel like I’m actually slowly starving to death. No wonder I can’t stick to a diet!!! I was actually eating food even though I didn’t want it, and was almost physically repulsed by it. I was eating food even though my stomach was already upset from being so full.

    I’m now on some very expensive meds that I THINK are already working. I have to take them 3x/day, one with every meal, and a full glass of water. This will definately help my diet, if I’m already restricted to 3 meals (instead of being a grazer — I CANNOT afford to take more the reccommended!) and upping my water intake! However, I was satisfied with breakfast and lunch — but not with dinner, when I didn’t take them. Even though I ate a dinner that was bigger than lunch, I kept roaming the house looking for more food. And then I ate that. That was a bit of an experiment, and it gives me hope that this is all fixable.

  • Really gross and possibly TMI question

    Alright, so with my consistent intestinal problems (not celiac or lactose intolerance) my GI doc wants me to have a "fecal fat qualitative" done. I have to (ugh) poop into something and then get my poop into one of their urinary cups, FREEZE IT (gross as that sounds, I guess it’s better than just leaving it around, huh?) and bring it in the next day when I go for bloodwork.

    So… I did that. I was lucky enough to do it while my husband was napping because he’s SO UNCOMFORTABLE about this that he’s teasing me relentlessly (he’s 32 going on 7). But they need about 1/2 cup, I filled about 1/3. I have another one of those urinary cups.

    Choice: Next time I have to poop (part of the problem is that I poop now the way I peed before diagnosis!) should I just try to fill the second cup? Or should I just bring it in tomorrow and let them tell me it’s not enough (it actually may be enough, I don’t know!), and I’ll do it again tomorrow instead? (For note, I’m off of school this week and the place is not even 15 mins away, so it’s not a horrible hassle to do option #2)

    I think half of this post is simply the desire to rant about the EEEEEEEEEEEEEEEEEEEEEEEEEWWWWWWWWWWWW factor of all of this! I like to laugh with my doctors that I have no more capacity for medical humiliation, but this kind of is humiliating — to have my feces examined like I’m a dog with worms 🙁

    Oh, and my doc thinks this all might be due to failing pancreatic enzymes! Apparently, my pancreas will not be happy until it really is just a blob of totally useless cells floating in my abdomen, living a totally non-stressed life on my dime.

  • Gotta love company parties 🙂

    Oh, yeah. The principal has a "spread" in his office before the Christmas holidays. It looks REALLY BAD if you don’t stop in and take something — it’s the kind of thing people notice and comment on around the water cooler.

    So what was there? A big thing of some kind of pudding, two HUGE cornucopia-things of cannoli cream with chocolate-covered cannoli shells, a huge basket of cookies, some Hanukah gelt, some horribly rich-looking chocolate thing with M&Ms on top (either brownies or fudge, I couldn’t tell!), those chocolate-cherry-cordial things, and cake.

    I went down there with a teacher who’s still new and scared of the principal’s office (:D) and really had to take something. I took ONE cookie, ONE piece of Hanukah gelt, and ONE brownie-thing.

    And I threw out the brownie thing 🙂

    Must have timed/dosed the insulin properly, because my sugar was a steady 85 at the end of the day.

  • I hate being sick! (rant)

    Last week was AWFUL. I wasn’t sick, but I’m sure it made me exhausted enough to allow me to be sick now. I not only teach, I also direct the ENTIRE drama program in the high school, and the play opened this past Friday. Needless to say, we were NOT ready, mostly because the wood supplier delivered the material for our flats WAY late. I have to hand it to my tech crew; they built (from scratch) 13 double-side wheeled flats — a style they’d never tried before — and painted them in a week. And then we could do lighting cues, and THEN work on switching sets for scene changes.

    Needless to say, I was at my school for 16 hours a day, and I was WORKING all those hours.

    Now… I’m sick. I woke up Saturday with a 100.6 fever (pretty high for me, since I usually run around 96.9-97.2). Unfortunately, we had two shows on Saturday, so I couldn’t skip out, and I spent Sunday researching and writing, since I have two papers due tomorrow.

    Now… I’m home sick. No fever, but my throat is so swollen that I can’t swallow properly — I wind up "backwashing" into my own mouth. Ick. My throat feels like acid is wearing away at it. I’m spitting up bloody mucus and today I started coughing for real.

    I have a doctor’s appointment in about 45 mins, but I still have to write another paper AND finish knitting a hat by around 6pm tonight. I am SO screwed!