Author: Januaryblue

I posted an introduction the other day about my daughter Samantha.

Here is where we are right now-

Her fasting glucose on Monday was 86. Her glucose tolerance test came back after two hours at 497.

We were sent back to the lab yesterday. Her fasting glucose yesterday was 87 or 89, I can’t remember and then in the afternoon they did a random glucose test and that number came back at 156. She had not eaten much yesterday, and I was afraid it would be almost another fasting test. She refused breakfast, had half of a half of a ham sandwich for lunch, snacked on a small slice of cuban bread and butter and had one See’s candy (we were with family for Christmas Eve during the day). She also drank one Caprisun.

I would guess it was about 2 hours after she ate that we went for the random test.

Her regular doctor will be back in the office on Monday. We’ve been talking to her nurse practitioner all last week. I’m hoping we start to get some answers.

Elizabeth

Hi everyone. My name is Elizabeth, my daughter Sam just turned 5 years old. In November she had a bad asthma attack and was prescribed prednisone. While on it, I noticed she was drinking a ton and peeing a lot. I was curious if it was a side effect of the medication and so, of course, I googled it. Everything I found said that if you notice increased drinking and urination while on prednisone to talk to your doctor because it could be a sign of diabetes. Apparently prednisone is a glucocortosteroid…or something like that. We went for a follow up asthma appointment and I mentioned the frequent drinking to my daughters doctor. She started to just brush it off as no big deal, but I reminded her that one other time my daughter was hospitalized for her asthma she had a high blood sugar reading and also that my dad was type 1. With that she said we should do a urine test. Sure enough she was spilling glucose in her urine. We were to follow up with a fasting glucose test. That came back borderline. So she wasn’t diabetic, but something was going on. We were told to wait three weeks to be sure the steroids were out of her system. We went yesterday for the tests, a fasting and a glucose tolerance test. Her fasting number was 87 which I am told is normal, but her glucose tolerance test came back at 497 and it’s supposed to be under 120. There are more test results we are waiting for-all things I can’t recall. Unfortunately the doctor sent us for the test and is gone on vacation this week, so we were only able to talk to her NP. She seemed confused by the whole thing and basically said that if she is not a diabetic right now, her body is certainly headed that way and is unable to process sugars properly. The NP is calling the children’s hospital and getting them in on it.

I have no idea what is really happening and waiting is killing me…

Thank you for listening and letting me get this out. I think having a dad with type 1 really makes it hard for me. I remember growing up I always swore I would never get married if I got t1…I didn’t want to put my kids through the highs and lows of D. The doctors called my dad a brittle diabetic, his sugars were really hard to control. I certainly didn’t want to pass it on to my kids. My dad was 14 when he was DX. When I was a kid he was on dialysis, until I was 9 and he was given a kidney transplant. When I was 17 he had a heart attack and last November When he was 62 and I was 32, my dad passed away. When we first started talking D with our 5 year old she cried saying she didn’t want to die like Papa. How sad for a 5 year old! We told her medicine is so much better now then when Papa was younger.

So much to comprehend and process. Forgive my rambling, but I am an inner jumbled mess and trying to keep it together on the outside for my daughter.